5 Reasons Celiacs Need Other Celiacs

Whether you're newly diagnosed or have known you had Celiac Disease for years, the support of others who understand will make all the difference in your life. It's important to your mental and physical well being.

1. You will keep up on the latest Gluten news. New Gluten Free products will become available or you might learn of something that is no longer considered gluten free.

2. The Celiac community will share tips for keeping your kitchen gluten free and safe. Things like having a new gluten free toaster or electric can opener aren't always apparent to newly diagnosed Celiacs, but are a big cross contamination issues. Tips like this can be learned at in-person and online support groups.

3. Other Celiacs are the best way to find doctors with the knowledge to properly advise you. Not all doctors know enough about Celiac Disease to help you through from diagnosis to wellness. You're going to want the best.

4. Many newly diagnosed Celiacs are completely lost and have no idea what to eat. It's easy to say fruits and vegetables are gluten free, but there is so much more to a healthy diet. You'll want to know how people deal with everything from daily eating to eating out.

5. Aside from the facts of what to eat and what not to eat, a newly diagnosed Celiac will do better if they can connect with someone who's gone through it all. From shopping to parties, the Celiac Community can offer suggestions, recipes and most of all emotional support. These people know what it was like to be blindsided by a diagnosis and then have to cope with family members and coworkers. They can tell you how they handled situations, rude comments, or the confusion that came with their own diagnosis.

Bottom line, don't fear a support group. You just may find new friends to share dinner with, swap Gluten Free recipes with, or just some information that will help you cope. Go ahead, Google a support group in your area.  You'll be glad you did.

Need a Diagnosis? Don't Give Up!

One of the most important things to remember when seeking a diagnosis of your symptoms is; Don't Give Up!

So simple, and yet so many people listen to doctors who tell them they're fine and their symptoms are all in their head. People stop looking and keep suffering.
My advice? Find a different doctor. One that will listen and not give up until they figure out what's wrong. If you know in your heart something is wrong, don't give up.

For years I had symptoms, stomach problems, headaches, exhaustion, etc. Mostly it was the stomach pain, irritable bowel, and inability to eat anything. Everything made me sick. A lot of the time I simply had toast for breakfast and ate nothing else all day until I was safely home where embarrassing stomach issues would be kept private.

Sure, I went to doctors, took their tests, got prescriptions for anti anxiety drugs (that's the only reason they could come up with for my problems), and finally gave up. I firmly believed no one could help me. There was something wrong with me and there was no help.

Life went on and I learned to cope. I didn't like social gatherings because most centered around food and then I'd get sick. I began to hate food. Yet I'd be so hungry by the time I came home I'd eat everything in sight. And life went on...

Call to Action;
When my daughter was 5 I started to see her having the same stomach issues as myself. We took her off milk and it got a little better (typical Celiac symptom) but she still had a bloated belly and problems with some food. It was hard to pinpoint. Doctors said she was fine. At this point I knew I needed answers to my problem so I could help my daughter. I started praying. Every time I was alone I'd pray for an answer, "I don't care what it is, just please send me an answer."

Back to the doctors and another brush off. This time I yelled at the doctor. Frustration welled up inside me and I said, "Something is wrong with me! Even a piece of bread makes me sick. Bread is what you give to sick people. What's wrong with me." He stared at me, obviously startled by my outburst, and said, "Celiac Disease."

Then he went on to explain I couldn't have it because I was 30 lbs over weight. "People with Celiac Sprue are really skinny," he explained. I asked him to test me and he refused. I went home and got on the internet and read everything I could about Celiac Disease and gluten. I went gluten free the next day. With in two weeks I was feeling better. Another month and life just got better, less painful. I took my daughter in and asked another doctor in the same practice to do the blood test. She said, "No, there's no reason to do that test." I sat down and crossed my arms. "I'm not leaving until you do the test."

She did the test; Daughter positive for Celiac Disease.

Moral to the story; Don't give up. I added years to my suffering because, for a while, I gave up. The answer is out there and sooner or later the right person, the right information, will come your way. Just don't give up.

Scary part of Celiac Disease

Doctor's refuse to diagnose it.

I was recently at a Celiac picnic and one of the most profound things these people had in common was all the doctors they had met -- over 100 people-- never tested them for Celiac and they waited years for a diagnosis. My own doctor refused to test me. Amost wouldn't test my daughter until I sat down and refused to leave. (both positive-thank you!)

In parts of Europe a Celiac test is quite common. So...excusseee me! Aren't most of us European? I'm 100% Irish. So, if I lived there would I have been diagnosed years ago?

Modern medicine in the USA should be ashamed. Everyone would with cronic digestive problems should be given a Celiac blood test. If doctors would wake up..the could save people years of suffering.